Breast cancer is the most common cancer in for women globally, yet we don’t know how many people receive a stage 4, metastatic diagnosis each year. Why? Simply because the data is not being collected.
Most cancer registries around the world collect information about initial cancer diagnosis and mortality but do not document recurrences, which represent the majority of Metastatic Breast Cancer (MBC) cases.
Without this data, we cannot understand MBC. Who are these women? How long do they live? How many are under the age of 50? What is their experience?
It’s not okay. We all deserve more accurate and inclusive data about MBC.