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“My name is Jeanette. I am a full time carer to my 27 year old son who has Down's syndrome and a severe learning disability. I currently receive 28 nights’ residential short breaks per year, but I am worried that without a bit of extra help things could reach crisis point.
“I asked for two nights’ temporary increase in respite per year in order to see us through this difficult patch but I've been told I cannot have any more and must use it on an emergency basis only.
“I feel so guilty because I feel I am not properly meeting my son’s needs at the moment. I've had some awful times when I have felt completely devoid of energy to look after him. I have thought ‘This is it. I've got nothing left’.”
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Charity number 222377 (England, Northern Ireland and Wales); SCO41079 (Scotland)